A Questionnaire Analysis of the Awareness of Blood Disease Inpatients and Their Families on Disease and Health Knowledge inside and Outside the Hospital

Objective: This study aimed to understand the awareness of blood disease inpatients and their families inside and outside the hospital's health knowledge of hematology and to provide a reference for doctor-patient communication between the hematology department and doctors of other departments.

Methods: An analysis from Fujian Medical University Union Hospital was conducted including 265 blood disease inpatients or their family members selected by convenience sampling between October 2021 and February 2023, and a combination of online and offline surveys was conducted using a self-administered questionnaire.

Results: Different groups of patients with blood diseases did statistically differ in the knowledge rate of blood diseases（X²=57.33，p<0.001）, including the group of patients with leukemia lymphoma （45.5%） higher than that with multiple myeloma（33.8%）. Of the 265 respondents, the group that was aware of the cost of the different stages of treatment (38.2%) was much less knowledgeable than those who were aware of the high-risk factors leading to the disease (60.67%), the symptoms that might appear (80.9%), the adverse side effects during the treatment process (69.66%), the procedures needed to treat the disease (60.67%), the possible risks of disease treatment(62.92%), and the nursing care required over the course of treatment(56.18%). In the actual course of treatment, 87.92% of the respondents believed that the doctors in their hospitals would inform them of the relevant information about the disease. More than half of the respondents had some knowledge of the various aspects mentioned above96.9% of the respondents indicated that they would like to be informed by their doctors of the disease they were suffering from; Among those who expressed dissatisfaction with the information communicated to them, the high-risk factors leading to the disease （8.75%）, the cost of the different stages of treatment （10.63%）, and the nursing care required over the course of treatment（9.38%）; In a self-administered survey on the popularization of science, it discovered that patients and their families scored a mean of 4.01 points (out of a possible 7) for knowledge of health in and out of the hospital, with a score for the removal of the PICC catheter being 43.91%, precautions for daily life being 50.55%, ways to prevent infection after chemotherapy being 83.39%, patients' diet being 77.86%, exercises that can be done after discharge being 14.76%, parsing routine blood reports being 47.23%, and situations that should consult as soon as possible being 79.70%.

Conclusion: We found that the general medical knowledge of blood disease inpatients and their families is restricted and impacted by themselves, the physicians, and other intricate circumstances. To increase patient compliance, treatment effectiveness, and recovery prospects, healthcare practitioners should improve communication so that patients may appropriately identify the disease.